What would you do if you or your child was diagnosed with a deadly disease for which there was no known treatment or cure?


Jocelyn Duff, Mom to Talia, felt she had no choice but to pursue a cure for her daughter’s rare disease. After a six-year diagnostic odyssey, then learning of a heartbreaking diagnosis similar to ALS, Jocelyn surrounded herself with compassionate researchers and a community committed to helping her find and fund a cure.

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On a mission to save the life of my child and examine how we approach research for rare diseases.

Science + Love = Hope